Saturday, October 31, 2009

Halloween 2009





Yesterday was a tough day. I was really worried about how today, our second Halloween without our precious Jeremy, would go.

Last year I remember Halloween was horrible. I spent so much of the day focused on our other children and making their day happy and special that I gave little thought to the landslide of grief that would settle in for the ride. By the time the grief settled in, there was little that I could do to manage the pain. A good friend and neighbor hugged me, allowed me to share what I was feeling, and handed me a glass of wine. (If you are reading this K., know that you and your family are missed.) A big reason that I felt so bad on Halloween was the fact that the grief was truly not expected that day. I knew other upcoming days would surely be painful but I did not expect it at all on Halloween.

This year, the day was still painful but definitely different. This year the decorations that were visible in yards around our town were particularly bothersome to me. I do realize that I have no right to say a word about the ways in which others choose to decorate their homes for the holidays. It was just a little unnerving to see graveyard scenes and skeletons looking so gory.

This year memories are much more vivid. I know I have mentioned before that the numbness I felt last year is completely gone. I am feeling the loss at full force speed. I remember the Halloween of 2007 that I was very pregnant. I remember those moments and then my brain is left to figure out how in the world I arrived at this place in my life, grieving the loss of my child, my baby. To understand that reality, it means that I must drag myself through some pretty horrific events.

A wise person objectively looked at the situation and helped me devise a "plan" so that we could attempt to avoid the same outcome as last year. Notice the word "plan".

The cool thing about plans is that there can many of them, Plan A, Plan B, Plan C, etc. You can abort the plan at any given time,determined solely by us, and you can also change the plan as needed. We don't need to married to a plan and execute it all the way until the end either. We had many other grieving families mention to us that planning for the difficult days was helpful. This idea of planning was so foreign yet desired last year. We just wanted a magic plan. We wanted someone else to make the perfect plan that would make the various situations as bearable as possible. Trouble is, no one can do that because grief is personal to each person and even to each family. Last year, we were numb, and we really had no idea what we wanted, what would feel okay, and even how to go about making such a plan. We got worn out in the discussion phase of the "plan". So last year, planning didn't always work out so good for us.

The magic plan never showed up. We have thankfully survived the year of firsts. So we at least have that first set of experiences to help guide us a bit.

So now on to the Halloween plan for 2009. The plan was to carve out a little time for Jeremy, to include him in on the festivities of the day. We began the day eating pumpkin waffles, which were quite delicious. We then headed to the soccer fields for a double game day. We enjoyed the role of the cheering squad and the older kids both played "Bootifully" There was a super fun Halloween party and also last minute decorating to do. My oldest son was even thoughtful enough to decorate Jeremy's picture by making his tombstone. Hard on me. Needful for him. He is processing this grief so much differently than I am. There was snuggle time while we watched Halloween movies and ate roasted pumpkin seeds. All in all, the whole day, I knew there would be time for Jeremy and it made the day somewhat easier to get through.

It was a deliberate thought to include Jeremy in our day. We made a sunshine Jack-O-Lantern in his memory. We visited the cemetery and placed a larger pumpkin on his grave. We revisited our discussions of our grief and answered more questions surrounding Jeremy's death. We lit a candle on our table during the trick-or-treating time to honor his memory and remaining presence in our hearts. Not easy by any sense of the word, but definitely better than last year.

I almost made it through the day without the magnitude of grief knocking me over...

Toward the end of the Trick-or Treat time a really cute little boy came walking up to our doorstep. You guessed it. He was almost two. His mother beamed with pride and joy as she stated to us that he would be two at the end of November. I mustered up a polite smile and then crumbled inside. There it was, right in front of me, a classic reminder of the very thing that I had lost. This was a big "Pause" moment for me. It nearly took my breath away.

A few deep breaths later I recovered. No one ever said that grief was quick and easy. I had told a fellow grieving parent that I expected moments of pause and sadness to show up this year. I am proud to say that I didn't spend the whole day residing in fear and running from the pain. Better yet, I tried my best to carry on, finding joy with the other kids and making the most of the day. I just expected those pause moments to come and when they did, I wasn't surprised. I was able to truly pause, remember Jeremy, reflect, and then return to what I was doing. I was even surprised at how smoothly and how quickly I was able to transition from place to place today. The "plan" helped me. I am learning to carry my grief alongside the way that I have determined that I want to live the rest of my life.

Overall, the "plan" worked out okay for us. I am grateful for the objective nudge to plan some special time for Jeremy today too. I even get an extra hour of sleep tonight to refuel for tomorrow. It is All Saints Day...another trying day.

Friday, October 30, 2009

Angel Mail #11


Dear Jeremy,

Hugs and kisses sweet little man. XXXXOOO You always looked like such a little man. Your hair was amazing! It fooled a lot of people trying to guess your age. Your hair was full, thick, and it just fell naturally into a hairstyle that left many thinking that we had just had it cut. All of it was completely natural and just the way that God made you. I also think you had such depth to your face and to the expressions that you made. It seemed like you knew more about life than anyone ever knew. Knowing what I know now, I think that you must have. OH how I wish we were better able to communicate back then. Perhaps then maybe your story would have ended differently.

I am having a hard time writing with the past tense today. I do not like writing about things that have already happened and events that lie completely in the past. I do not like wondering about what might have been. I want to write about real stories from today and look forward to a thousand tomorrows. I long to see you and to know more about you.

You would be 23 months old today. It is the last time that we parents count our children's ages in months. You would be turning two years old soon and then three, four, etc. You would be... that could be a story in itself.

I see the possibilities of a life shared with you on earth all around me every day. It pains me deeply to be without you. I am still embracing my grief for I know that is the ticket to healing. I am working really hard to examine my grief and to shift my thinking so I can see a whole new perspective of the way things are and the way that things will be in the years to come. I remain committed to healing in a healthy way for me, your Daddy, and your siblings. It is long and hard work.

The possibilities of what you do each day in heaven and in the presence of God fascinates and comforts me. I think often how you don't hurt at all, how you are simply perfect, how you are running, laughing, and playing with many of the angel children we have come to know and love. Our families have become friends as we all share a common bond grieving the loss of our children. We have learned to lean a little on each other for strength and support. I wonder what all of you children must be like together. I wonder how you are spending time with other members of our family that have gone on before us too. I wonder how badly you wish you could share with me even a glimpse of how wonderful heaven really is, because then I truly wouldn't be sad at all. It is a faith journey that I must travel on my own.

All positive and faithful thinking aside I am still sad sometimes, okay a lot. I am trying to live life the best way I know how, all the while, hoping to honor you and to bring glory to God. I sincerely hope there is some understanding that I am at least trying to lead a good life.

I know that you would want me to live my life fully and with great joy. You made it possible for us to see the world from a different lens. We see more clearly and more powerfully the heart of the matter surrounding many if not all of life experiences.

Jeremy, here or there, you remain a part of me and you always will. You will always be my little man. I just wanted you to know that I haven't forgotten you today on such a milestone day. I will never forget, not today, not tomorrow, not ever!

My Deepest Love to You On the Wings of Angels,
Mommy

Thursday, October 29, 2009

An Attitude With Gratitude

"The happiest people do not have the best of everything. They just make the best of what they have."

I borrowed this from yet another blog this week. Can you tell that we have been hanging out on the couch for over a week now?

That quote seems to sum up what our family has been doing for a year and a few months now. We have been trying to make the most out of life and trying to figure out how to carry this enormous pain in our hearts at the same time. It is a tough job.

Perspective is a key element in finding joy. Having a heart filled with gratitude can make a hug difference on your outlook on life.

Last night we were faced with the sad experience of saying good bye and farewell to yet another person who has made a tremendous difference in the lives of EVERY member of our family. I've come to realize that I do not like good byes. So I put my "attitude with gratitude" into motion and the perspective shifts a little...

We "GET" to feel sad saying goodbye. It is a gift because it is a sign that we loved well and were loved in return. Feeling sad means this person has made a way into our hearts. This person made a difference and really helped us in ways that are immeasurable and for this we are grateful.

We GET the opportunity to say goodbye and to share with this person the ways that they have impacted our lives for the better.

We GET to say good bye and to have that sense of closure but will remain hopeful that we will be able to stay in touch over the years.

We GET to feel sad because it means we know the tremendous gift of letting people into our hearts and into our lives,especially during a time of great need and despair. We had the privilege of seeing the numerous (too many to count)provisions that God made for us when we needed it most. We know about and felt the ways that family, friends, and even more profound, the ways that complete strangers can impact a human heart and soul. We have learned to accept the helping hands, compassion, love, and support that so many others can offer.

We GET to say goodbye knowing that God placed this person in our lives at a very specific time and for a very specific purpose.

We GET to say goodbye knowing that our lives are better for having had this person leave their mark on our hearts. The lessons we have learned will remain a part of who we have become.

We GET to say goodbye at a time when we are stronger.

We GET to say goodbye with fond memories and stories to warm our hearts for many years to come.

We GET to hold this person in our hearts forever. Memories last a lifetime.

We GET to warmly send this special person on their way and share in their joy and excitement as they begin a new chapter of their life journey here on earth. We GET to feel joy in our hearts knowing that this person is embracing the "good" in life and chasing after it with their whole mind, body, and soul. One must ride out the good waves of life for as long as you can and as far as they will take you. CARPE DIEM!

So while it still makes us feel sad to say goodbye, an attitude with gratitude makes all of the difference in the world!

** I have had to say goodbye too many times to count this last year. Not even one was easy. I had each and every one of these people in mind as I wrote this post. If any of you are reading this, know that you are deeply missed and thought of often. You are FOREVER in our hearts and will never be forgotten.

Wednesday, October 28, 2009

A Beautiful View




Sometimes it feels nice to just take a moment to enjoy the beauty of fall. This is one my favorite trees in the fall and it just happens to be right in my own backyard. Our sunflower garden is dwindling, but none the less, still blooming so I have not had the heart to take it down. To my amazement, the sunflowers are blooming just beneath my favorite tree. (Insert smile) I love this tree because it has all of the colors of fall on one tree. It just stands out next to the other trees in the woods. It is a welcomed sight outside my window.

So for now I will continue to enjoy the beautiful sights of fall. I will open the windows to allow the smells of fall indoors and will also enjoy the comforts of fall foods. I will enjoy watching the leaves fall to the ground so that we can hear the crunching sound beneath our feet on fall walks and jump in the leaf piles.

I will enjoy each moment today and in the coming weeks for all to soon we will enter a painful season of time. I wish I could hibernate.

Tuesday, October 27, 2009

Encouragement

Powerful words spoken by another Mom in the midst of a tough battle with her daugher.
She said...

I read something the other day that was an encouragement. It didn't serve to say that our days would get easier, rather that they would be purpose filled. I would so desperately love for all of this to go away, to go back to the days before. Life with more innocence, or maybe just more naivety. I know no one would ever want to travel this road and yet there are many families that have no choice. However, God uses these children mightily even in their suffering. Here is the excerpt that I read..

"When your faith endures many conflicts and your spirit sinks low, do not condemn yourself. There is a reason for your season of heaviness. Great soldiers are not made without war. Skillful sailors are not trained on the shore. It appears that if you are to become a great believer you will be greatly tested. If you are to be a great helper to others, you must pass through their trials. The uncut diamond has little brilliance, the unthreshed corn feeds no one, and the untried believer is of little use or beauty. There are great benefits to come from your trials and depression....... Charles Spurgeon. "

I have pondered these very words a lot and still do not have very many answers. I do however remain in a journey towards trust that good will come come from this horrific trial. Don't get me wrong signs of this "good" have been showing up all along but it is all a matter of perspective for us in particular. We are walking a journey to release that claim to "good" and walk with the attitude of being used to fulfill a greater purpose in life and to do our part to bring glory to God.
You see "good" to us is a place where we are a family of six for real here on this earth. So we are left to walk daily on a journey of acceptance of being called to another purpose and releasing our anger towards not being in control of any of it.

Monday, October 26, 2009

Weekending







I read lots of blogs. One blog writer often publishes posts on Mondays called Weekending. I like to share my own Weekending post.

It seems as though everyone I know has a household of germs. The number of family members infected seems to vary. We have joined the ranks of those infected with germs.

In our house this weekend we:

have taken lots of naps
watched our fair share of movies
woken up many times overnight
eaten lots of soup
drank lots of warm liquids
enjoyed Pumpkin ice cream
got the humidifier running
made the sanitizer, warm water and soap, and even Lysol/Clorox our new best friends
played lots of Webkinz arcade games
played numerous games of Go Fish and King in the Corner
prayed for healing and to calm anxiety
made regular time intervals with Motrin
used up the last of my favorite Hand Lotion to prevent dry and chapped hands
tended to laundry, laundry, and more laundry
read lots of our favorite stories
played gently outside just to soak up a little sunshine
watched a few football games
and last but not least, even lost a tooth.

How was your weekend? What ways do you and your family cope with illness in your home. What thoughts on comfort do you have to share?

Saturday, October 24, 2009

Six Little Pumpkins




We took a trip to the Pumpkin farm to pick our pumpkins. The older kids miss going on school trips to the farm. So after school one day we decided to race the rain clouds and sneak in some pumpkin picking time. Each child picked their own pumpkin and carried it out of the patch. They decided to take one home for Jeremy too which melted my heart. On the way home from the patch we stopped by the cemetery. All in all, a bittersweet day. We are still a family of six even if it isn't always to visible to others around us.

Thursday, October 22, 2009

My Savior Leads Me




I have been fixed on a certain song by Chris Tomlin all week. It has been on repeat mode on my car CD player and I have found such comfort listening to it as I have driven from here to there about 100 times a day. It is called All The Ways My Savior Leads Me. The lyrics are below. I was not able to locate it on Playlist. I especially love the imagery involved in the chorus "You lead me and keep me from falling. You carry me close to your heart and surely your goodness and mercy will follow me."

All the way my Savior leads me
Who have I to ask beside
How could I doubt His tender mercy
Who through life has been my guide

All the way my Savior leads me
Cheers each winding path I tread
Gives me grace for every trial
Feeds me with the living Bread

You lead me and keep me from falling
You carry me close to Your heart
And surely Your goodness and mercy will follow me

All the way my Savior leads me
O, the fullness of His love
O, the sureness of His promise
In the triumph of His blood
And when my spirit clothed immortal
Wings its flight to realms of day
This my song through endless ages
Jesus led me all the way
Jesus led me all the way

All the way my Savior leads me
All the way my Savior leads me


Indeed My Savior Leads Me...I'll share an excerpt from my day.

School was cancelled today since there were a number of teachers that have come down with the flu. In fact, we know of several families experiencing similar symptoms. Unfortunately illness of any kind just brings to the surface a lot of anxiety for me. I won't go into any deeper thoughts than that. Just like anyone else, we are not immune from illness and disease. This time of year just brings more anxiety and uneasiness for me due to my past experiences with health conditions in general, but especially those related to Jeremy.

After completing a few activities to keep up with school assignments since there was no school today, we all decided we needed to get outside and enjoy the beautiful fall weather. So off we went for a bike/scooter ride.

I also needed some time to connect with the splendor and beauty of fall. I needed time to reflect on many of the beautiful aspects of my life and the scenery all around me was a good place to start. Recently there have been numerous situations in my life where I have felt a little frustration . I once again struggle with trying to understand God's will and his plan. I am a slow learner I suppose. His ways are not like my ways and His thoughts not like my thoughts. I need to get to a place where I implicitly just trust Him, but it is not an easy thing for me to do.

A few weeks ago I really struggled with one particular experience. I prayed really hard for God's wisdom and direction to help me make a decision. Without going into a long and really unnecessary story describing the details, the important thing to know was that in the end, the answer I received was to not take part in the experience. To be honest, I didn't understand and was frustrated. This experience seemed like it would be a good thing for me in more ways than one. Now while my Lord did not owe me any explanations, that is exactly what he offered me today. Grant it this enlightenment came several weeks later after making my decision but none the less, I was in awe and felt a sense of understanding after all. He did that for me...His decision freed me from a potentially painful experience that perhaps He knew better than I, that I wouldn't have had the strength to endure. At least not now anyway. He did that for me. My Savior leads me. I am in awe.

After that experience, I knew I really needed a change of scenery. So imagine my delight when after walking for less than 100 ft I spotted the Frisbee pictured above. I know who is responsible for that gesture since it is fall and I could have easily walked right past this location and never spotted a thing. Even stranger yet, that of all things to be on that Frisbee was a sunshine. I'm not surprised.

My Savior Leads Me. Jeremy is with me too.

So in these uncertain times and trials of life, know that the Lord and Savior will lead you and hold you close to his heart. He alone will keep us all from falling. He will meet us where we are and carry us when needed. His grace and mercy are like that. I also know that while uncertain times bring anxiety, frustration, a lack of understanding, and a whole host of other emotions, He understands them all. He wants us to bring those to Him and lay them at the foot of the cross. Most importantly I know that he is weaving the masterpiece of our lives and that while we do not understand His ways, he is busy weaving things together for our good. It just may take awhile for us to see the whole picture. We must trust in Him and be patient. One day it will all become crystal clear and we will fully understand our journey on this earth.

1 Thessalonians 5:17

Faith shouldn't die if the answers come slowly, for the delay may be God's way of working his will. When you are tired of praying, know that God is present, always listening, always answering-in ways that he knows are best.

Romans 8:28

And we know that God causes everything to work together for the good of those who love God and are called according to his purpose for them.

I also wanted to share some notes in my bible about this verse. God works in everything-not just isolated incidents, for our good. This does not mean that all that happens to us is good. Evil is prevalent in our fallen world, but God is able to turn every circumstance around for our long range good. Note that God is not working to make us happy but to fulfill his purpose. Our faith is God does not waiver in pain and persecution because we know God is with us.

May you feel peace in your hearts today regardless of the circumstances that may surround you. God is with us all.

Sunday, October 18, 2009

Expectations

I didn't realize so much time had passed since my last post. Truth be told I have had many difficult days lately. I have fallen in love with a new term, "labrinthing". I am labrinthing through my own cycle of grief. Hopefully each time I pass through the same feelings, I will find my way out sooner and escape with a little less pain each time.

It is no secret that I have high expectations of myself. A fellow grieving mother reminded me that those very expectations can look a little different for those suffering from grief. I read everything I could get my hands on last year regarding grief and heaven. This year, I have revisited many of those same resources and it amazes me how differently I have internalized the material. The following poem is beautiful. Perhaps helpful to others who may be experiencing the same hurt as I am or maybe someone contemplating how to help someone grieving a loss of someone they love.

Bereaved Parents Wish List

I wish my child hadn’t died. I wish I had him back.

I wish you wouldn’t be afraid to speak my child’s name. My child lived and was very important to me. I need to hear that he was important to you as well.

If I cry and get emotional when you talk about my child, I wish you knew that it isn’t because you have hurt me. My child’s death is the cause of my tears. You have talked about my child, and you have allowed me to share my grief. I thank you for both.

I wish you wouldn’t "kill" my child again by removing his pictures, artwork, or other remembrances from your home.

Being a bereaved parent is not contagious, so I wish you wouldn’t shy away from me. I need you more than ever.

I need diversions, so I do want to hear about you; but I also want you to hear about me. I might be said and I might cry, but I wish you would let me talk about my child, my favorite topic of the day.

I know that you think of and pray for me often. I also know that my child’s death pains you, too. I wish you would let me know things through a phone call, a card or a note, or a real big hug.

I wish you wouldn’t expect my grief to be over in six months. These first months are traumatic for me, but I wish you could understand that my grief will never be over. I will suffer the death of my child until the day I die.

I am working very hard in my recovery, but I wish you could understand that I will never fully recover. I will always miss my child, and I will always grieve that he is dead.

I wish you wouldn’t expect me "not to think about it" or to "be happy". Neither will happen for a very long time so don’t frustrate yourself.

I don’t want to have a "pity party," but I do wish you would let me grieve. I must hurt before I can heal.

I wish you understood how my life has shattered. I know it is miserable for you to be around me when I’m feeling miserable. Please be as patient with me as I am with you.

When I say, "I’m doing okay," I wish you could understand that I don’t feel okay and that I struggle daily.

I wish you knew that all of the grief reactions I’m having are very normal. Depression, anger, hopelessness and overwhelming sadness are all to be expected. So please excuse me when I’m quiet and withdrawn or irritable and cranky.

Your advice to "take one day at a time" is excellent. I wish you could understand that I’m doing good to handle him at an hour at a time.

I wish you understood that grief changes people. When my child died, a big part of me died with him. I am not the same person I was before my child died, and I will never be that person again.

I wish very much that you could understand – understand my loss and my grief, my silence and my tears, my void and my pain. But I pray daily that you will never understand.


Copyright © 2008 - 2009 Compassionate Friends.

Dear God,

You know all too well the plans that you have for me and my life. I do not. Please forgive me for fighting the circumstances of my life and behaving in such a way that may seem as though I do not trust you completely. I am struggling to understand my purpose on this earth. All I have ever known has been changed in a instant right before my eyes. There are so many resemblances to my old life within my sight every day. I know my completeness dwells within you Lord. Show me the way. Light the way and be patient, for I am following you. I trust you and know that I have peace in You alone.

Amen.